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Level of distress experienced by the patient with glioblastoma multiforme and the caregiver considering their medical education background: A qualitative study

  • Made Agus Mahendra Inggas ,
  • Dyani Pitra Velyani ,
  • Dewa Ayu Ina Dianata ,
  • Julius July ,

Abstract

Introduction: Patients with glioblastoma multiforme (GBM) and their caregivers will face psychological distress. Identification of the distress level is crucial to control morbidity factors during treatment. This study aimed to describe the level of distress experienced by patients and their caregivers during the disease period by considering their medical education background. According to the author, this kind of study is limited.

Methods: The timeline was divided into the early stage of radiation treatment (T1) and the follow-up chemotherapy treatment (T2). All the subjects were screened for distress levels using the distress thermometer and National Comprehensive Cancer Network (NCCN) problem checklist followed by in-depth interviews. Significant distress was said to be positive if the DT score was> 4. All of the subjects were divided into two groups, with and without a medical education background.

Results: From T1, subjects and caregivers with medical education (P-D) were higher than those without medical education (P-D > P-non D; C-D > C-non D). Another comparison shows that P-D was higher than C-D. In contrast, P-non D was lower than C-non D. Based on the time data collected, it showed DT: P-non D T2 > P-non D T1, but there was no difference between T2 and T1 in the caregiver's group: C-non D T1 = C- non D T2.  From the NCCN problem checklist, it was known that they attributed their distress mostly to physical problems.

Conclusion: Knowledge of the disease is not only a helpful way to deal with GBM but also a contributing factor to the severity of distress. Providing 'wise' information for each patient and their caregiver is needed to achieve the therapeutic goal and optimally increase the patient's quality of life.

Keywords: caregiver; distress; DT scores; medical knowledge status; glioblastoma multiforme

How to Cite

Inggas, M. A. M., Velyani, D. P., Dianata, D. A. I., & July, J. (2023). Level of distress experienced by the patient with glioblastoma multiforme and the caregiver considering their medical education background: A qualitative study. Indonesian Journal of Neurosurgery, 6(3), 75–78. https://doi.org/10.15562/ijn.v6i3.254

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Made Agus Mahendra Inggas
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IJN Journal


Dyani Pitra Velyani
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Dewa Ayu Ina Dianata
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Julius July
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